The meaning of neutropenia and homecare needs according to caregivers of children with cancer

This study aimed to understand the meanings caregivers attributed to the process of caring for a neutropenic child at home and know their needs for orientation related to care for these children. This descriptive study was carried out at the Pediatric Oncology Institute through semi-structured interviews, involving eleven caregivers. Data were organized according to the content analysis technique and interpreted according to Social Representations theory. Results indicate changes in the physical environment, people and human relationships, evidencing crises and transition towards stability. The following care procedures raised doubts: hyperthermia, body, food and environmental hygiene, risks of interpersonal contact and special care. The conclusion is that caregivers need technical and emotional preparedness to cope with the reported difficulties, including aggravating situations.

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Bibliographic Details
Main Authors: Gelesson,Débora Duarte, Hiraishi,Liliane Yumi, Ribeiro,Letícia Alves, Pereira,Sonia Regina, Gutiérrez,Maria Gaby Rivero de, Domenico,Edvane Birelo Lopes De
Format: Digital revista
Language:English
Published: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2009
Online Access:http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692009000600002
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Summary:This study aimed to understand the meanings caregivers attributed to the process of caring for a neutropenic child at home and know their needs for orientation related to care for these children. This descriptive study was carried out at the Pediatric Oncology Institute through semi-structured interviews, involving eleven caregivers. Data were organized according to the content analysis technique and interpreted according to Social Representations theory. Results indicate changes in the physical environment, people and human relationships, evidencing crises and transition towards stability. The following care procedures raised doubts: hyperthermia, body, food and environmental hygiene, risks of interpersonal contact and special care. The conclusion is that caregivers need technical and emotional preparedness to cope with the reported difficulties, including aggravating situations.