Disability in Inflammatory Bowel Disease: Translation to Portuguese and Validation of the ‘‘Inflammatory Bowel Disease - Disability Score’’

Background: Inflammatory bowel disease (IBD) has a physical, psychological and social impact, often compromising the patient’s ability to perform daily activities. Recently a new measurement for disability in IBD was developed. The Inflammatory Bowel Disease-Disability Score (IBD-DS) comprises the following domains: mobility, self-care, major daily life activities, gastrointestinal-related problems, mental health and interaction with the environment. The aim of our study was to translate to Portuguese and to validate the IBD-DS. Methods: Eighty-five patients, 55 with Crohn’s disease (CD) and 30 with ulcerative colitis (UC), completed the Portuguese version of the IBD-DS and the short inflammatory bowel disease questionnaire (SIBDQ-10 questions). Disease activity was assessed using the Harvey-Bradshaw (HB) for CD and partial Mayo score (pMayo) for UC. Pearson’s correlation coefficient was used to assess the correlation between the IBD-DS and SIBDQ. The Student’s t-test was used to compare the mean of IBD-DS between active and inactive disease. Statistical analysis was performed with SPSS 21.0 and the statistical level of significance (˛) was established at 5%. Results: In our study, a significant negative correlation between the IBD-DS and the SIBDQ was observed (r =−0.858, p < 0.001 for CD and r =−0.933, p < 0.001 for UC). There was a statistically significant difference of the mean of IBD-DS between inactive vs. active disease (93.78 vs. 117.57, p = 0.016 for CD and 78.96 vs. 137.14, p < 0.001 for UC). Conclusion: The Portuguese version of the inflammatory bowel disease-disability score has a strong correlation with patients’ quality of life and clinical disease activity and was shown to be a valid tool to measure disability in patients with inflammatory bowel disease.

Bibliographic Details

Main Authors:	Magalhães,Joana, Castro,Francisca Dias de, Carvalho,Pedro Boal, Machado,João Firmino, Leite,Sílvia, Moreira,Maria João, Cotter,José
Format:	Digital revista
Language:	English
Published:	Sociedade Portuguesa de Gastrenterologia 2015
Online Access:	http://scielo.pt/scielo.php?script=sci_arttext&pid=S2341-45452015000100003
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