Hepatic Glycogen Storage Diseases Toward One Global Collaborative Network
Abstract The third international meeting of the Scandinavian Association for Glycogen Storage Disease focused on hepatic glycogen storage disease and was organized for health-care professionals, patient representatives, and representatives from the industry. This report highlights dilemmas in dietary management, differences in monitoring strategies, and challenges with rare disease care, research, and patient participation.
Saved in:
Main Authors: | , , , , , , , , , , , , , , , , |
---|---|
Format: | Digital revista |
Language: | English |
Published: |
Latin American Society Inborn Errors and Neonatal Screening (SLEIMPN); Instituto Genética para Todos (IGPT)
2017
|
Online Access: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S2326-45942017000100306 |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|