Hepatic Glycogen Storage Diseases Toward One Global Collaborative Network

Hepatic Glycogen Storage Diseases Toward One Global Collaborative Network

Abstract The third international meeting of the Scandinavian Association for Glycogen Storage Disease focused on hepatic glycogen storage disease and was organized for health-care professionals, patient representatives, and representatives from the industry. This report highlights dilemmas in dietary management, differences in monitoring strategies, and challenges with rare disease care, research, and patient participation.

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Bibliographic Details
Main Authors: Derks,Terry G. J., Nemeth,Antal, Adrian,Katrin, Arnell,Henrik, Roskjær,Ann Bech, Beijer,Eva, Boekhorst,Sebastiaan te, Heidenborg,Carina, Landgren,Marcus, Nilsson,Mikael, Papadopoulou,Domniki, Ross,Katalin, Sjöqvist,Elisabeth, Stachelhaus-Theimer,U, Steuerwald,Ulrike, Törnhage,Carl-Johan, Weinstein,David A.
Format: Digital revista
Language:English
Published: Latin American Society Inborn Errors and Neonatal Screening (SLEIMPN); Instituto Genética para Todos (IGPT) 2017
Online Access:http://old.scielo.br/scielo.php?script=sci_arttext&pid=S2326-45942017000100306
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