Quality of life in adults with sickle cell disease: an integrative review of the literature
ABSTRACT Objective: To identify the available evidence in the literature on health-related quality of life in adults with sickle cell disease. Method: integrative review of MEDLINE, CUMED, LILACS and SciELO databases, from articles developed in this area, published between 2005 and 2015, in English, Portuguese or Spanish. Results: 22 articles were included, six scales were used to evaluate health-related quality of life scores: three generic and three specific. No specific scale for adults with sickle cell disease has been adapted to Brazilian Portuguese so far. Patients affected by frequent painful crises, with low adherence to treatment, had a compromised quality of life. Conclusion: Selected studies have shown that patients with sickle cell disease have worse scores than the general population. These indicators should be instrumental to the nurse in the proposal of interventions and strategies of assistance and socio-educational, with a view to improving the quality of life of this clientele.
Main Authors: | Freitas,Sandra Luzinete Felix de, Ivo,Maria Lucia, Figueiredo,Maria Stella, Gerk,Maria Auxiliadora de Souza, Nunes,Cristina Brandt, Monteiro,Fernando de Freitas |
---|---|
Format: | Digital revista |
Language: | English |
Published: |
Associação Brasileira de Enfermagem
2018
|
Online Access: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000100195 |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
Similar Items
-
Dynamics of sickle cell disease as one of the determinants of quality of life
by: Ivo,Maria Lucia, et al.
Published: (2013) -
Sexuality and sickle cell disease
by: Figueiredo,Maria Stella
Published: (2013) -
Impact of neuropathic pain on quality of life in adults with sickle cell disease: observational study
by: Santos,Lismar Fernando Oliveira dos, et al.
Published: (2021) -
Sickle cell retinopathy: A literature review
by: Ribeiro,Marina Viegas Moura Rezende, et al.
Published: (2017) -
The relationship between genotype, psychiatric symptoms and quality of life in adult patients with sickle cell disease in São Paulo, Brazil: a cross-sectional study
by: Mastandréa,Érika Bergamini, et al.
Published: (2015)