A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR

A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR

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Bibliographic Details
Main Authors: van Damme, Philip, Alarcón-Moreno, Pablo, Bernabé, César Henrique, Cámara, Alberto, Le Cornec, Clémence M. A., Dos Santos Vieira, Bruna, Van der Velde, K. Joeri, Zhang, Shuxin, Carta, Claudio, Cornet, Ronald, t Hoen, Peter A.C., Jacobsen, Annika, Swertz, Morris A., Roos, Marco, Benis, Nirupama
Other Authors: European Commission
Format: artículo biblioteca
Language:English
Published: Ubiquity Press 2023-06-05
Subjects:Data management planning, European Reference Networks, FAIR data, FAIR data stewardship, Patient registries, Rare diseases,
Online Access:http://hdl.handle.net/10261/331435
http://dx.doi.org/10.13039/501100000780
https://api.elsevier.com/content/abstract/scopus_id/85164259134
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