Functional and self-care capacity of people with multiple sclerosis

Objective: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. Method: correlational, cross-sectional study with a quantitative approach performed with individuals in outpatient follow-up. We collected sociodemographic and clinical data and applied the Appraisal of Self-care Agency Scale, the Barthel index, the Lawtton and Brody Scale, and the instrument to investigate the performance in Advanced Activities of Daily Living. We performed descriptive and inferential analysis. Results: most patients were classified as “having self-care” (82.14%); with moderate dependence (51.19%) for the basic activities of daily living, partial dependence for the instrumental activities of daily living (55.95%), and more active for the advanced activities of daily living (85.71%). Patients with longer disease duration had a higher number of disabilities and, in those with better socioeconomic and educational profile, the functionality was better. Conclusion: disease duration was strongly correlated with a higher number of disabilities and better socioeconomic and educational profiles showed to be protective factors for functionality. Care planning should consider the needs observed by the multidisciplinary team, stimulating the development of self-care, functionality and sociability.

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Main Authors: Oliveira-Kumakura,Ana Railka de Souza, Bezutti,Larissa Maria, Silva,Juliany Lino Gomes, Gasparino,Renata Cristina
Format: Digital revista
Language:English
Published: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2019
Online Access:http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692019000100367
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spelling oai:scielo:S0104-116920190001003672019-11-29Functional and self-care capacity of people with multiple sclerosisOliveira-Kumakura,Ana Railka de SouzaBezutti,Larissa MariaSilva,Juliany Lino GomesGasparino,Renata Cristina Activities of Daily Living SelfCare Multiple Sclerosis Human Activities Chronic Disease Nursing Objective: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. Method: correlational, cross-sectional study with a quantitative approach performed with individuals in outpatient follow-up. We collected sociodemographic and clinical data and applied the Appraisal of Self-care Agency Scale, the Barthel index, the Lawtton and Brody Scale, and the instrument to investigate the performance in Advanced Activities of Daily Living. We performed descriptive and inferential analysis. Results: most patients were classified as “having self-care” (82.14%); with moderate dependence (51.19%) for the basic activities of daily living, partial dependence for the instrumental activities of daily living (55.95%), and more active for the advanced activities of daily living (85.71%). Patients with longer disease duration had a higher number of disabilities and, in those with better socioeconomic and educational profile, the functionality was better. Conclusion: disease duration was strongly correlated with a higher number of disabilities and better socioeconomic and educational profiles showed to be protective factors for functionality. Care planning should consider the needs observed by the multidisciplinary team, stimulating the development of self-care, functionality and sociability.info:eu-repo/semantics/openAccessEscola de Enfermagem de Ribeirão Preto / Universidade de São PauloRevista Latino-Americana de Enfermagem v.27 20192019-01-01info:eu-repo/semantics/articletext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692019000100367en10.1590/1518-8345.3068.3183
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countrycode BR
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region America del Sur
libraryname SciELO
language English
format Digital
author Oliveira-Kumakura,Ana Railka de Souza
Bezutti,Larissa Maria
Silva,Juliany Lino Gomes
Gasparino,Renata Cristina
spellingShingle Oliveira-Kumakura,Ana Railka de Souza
Bezutti,Larissa Maria
Silva,Juliany Lino Gomes
Gasparino,Renata Cristina
Functional and self-care capacity of people with multiple sclerosis
author_facet Oliveira-Kumakura,Ana Railka de Souza
Bezutti,Larissa Maria
Silva,Juliany Lino Gomes
Gasparino,Renata Cristina
author_sort Oliveira-Kumakura,Ana Railka de Souza
title Functional and self-care capacity of people with multiple sclerosis
title_short Functional and self-care capacity of people with multiple sclerosis
title_full Functional and self-care capacity of people with multiple sclerosis
title_fullStr Functional and self-care capacity of people with multiple sclerosis
title_full_unstemmed Functional and self-care capacity of people with multiple sclerosis
title_sort functional and self-care capacity of people with multiple sclerosis
description Objective: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. Method: correlational, cross-sectional study with a quantitative approach performed with individuals in outpatient follow-up. We collected sociodemographic and clinical data and applied the Appraisal of Self-care Agency Scale, the Barthel index, the Lawtton and Brody Scale, and the instrument to investigate the performance in Advanced Activities of Daily Living. We performed descriptive and inferential analysis. Results: most patients were classified as “having self-care” (82.14%); with moderate dependence (51.19%) for the basic activities of daily living, partial dependence for the instrumental activities of daily living (55.95%), and more active for the advanced activities of daily living (85.71%). Patients with longer disease duration had a higher number of disabilities and, in those with better socioeconomic and educational profile, the functionality was better. Conclusion: disease duration was strongly correlated with a higher number of disabilities and better socioeconomic and educational profiles showed to be protective factors for functionality. Care planning should consider the needs observed by the multidisciplinary team, stimulating the development of self-care, functionality and sociability.
publisher Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo
publishDate 2019
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692019000100367
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